
We do things like eat french toast dripping with syrup for lunch, and play for hours on fluffy blankets spread all over the floor. Down syndrome doesn't usually dominate or even temporarily rule our gingerbread living. To us it is a fact of life, Rozie has Down syndrome and she has blue eyes, but every once in awhile i get a comment that knocks me on my tush. When i am out in public i speak of Rozie's diagnosis comfortably and freely, her diagnosis is part of who she is, and it isn't part of who she is.

I was at a ladies night and i was speaking to some expecting women and one was asking me a lot about my pregnancy with Rozie. You know the typical questions " Did you know ahead of time?" no. "Was there signs that you saw during an ultra sound" yes but those signs can also mean nothing, so we disregarded them. " How old are you?" 36 , but those statistic are inaccurate i know many women have had a child with Down syndrome and were in their 20s and even a first child. Once i said that it set her off, she started holding her belly in fear saying that she didn't want to talk about it anymore , G-d forbid it was to happen to her, and she walked away with terror in her eyes. I stood there with tears in my eyes.

My Rozie, my baby , my love, my pride, my gift from Hashem, my Bracha, my beauty, my little girl, my child, my joy, my EVERYTHING, is something to cause another woman to hold her belly in fear and pray it does not happen to her. Times like this make me want to crawl back into my house and go back to my perfect little life, with french toast and rock star mugs, but as we all know that is impossible, so i thought about this and here is what i have to say......
1. Down syndrome IS beautiful, beauty comes in all shapes and sizes
2. Having a child who learns differently is not the end of the world, it is just different
3. Having a child with Down syndrome is hard because of the opinion of the rest of the world, not because of the child herself
4. Having a child with Down syndrome is a blessing, it really is.
5. Having a child with Down syndrome will change your outlook on the whole world, and you will wonder how you were doing it before with out this special soul.
6. Lastly if i haven't convinced you and this is still a fear, than please, never ever ever express that to a parent of a special needs child. To say things like thank G-d my child does not have Down syndrome, or I'm so worried i'll have a baby like yours, is hurtful and cruel, even if you really feel that way. My child is a blessing and THANK G-D I HAVE BEEN GIVEN THIS BRACHA IN MY LIFE. This is not a G-d forbid this is a Baruch Hashem.













24 comments :
Dear, sweet, Sheva...people just don't know what they are missing! Nechama Rozie is most definitely a Baruch Hashem!
Fear is an ugly persona, and sometimes people wear that mask without realizing how hurtful it can be to others around them.
I wish for some way to convince the world of the love and beauty in Down syndrome. I feel a tinge of sadness for those who will never know this love and beauty at it's purest (in my opinion).
Keep your chin up, your heart open, and your ROCKSTAR cup full! You, my dear, are worthy!
<3
I'm sorry this happened to you, people really don't think before they speak do they?
BTW I love this picture addiction on your blog,its nice to see them growing even though we don't live close by.
love
Menucha
Wow.... I still marvel that people could behave so thoughtlessly towards you when your daughter is clearly a precious diamond! I look at these pictures, and she simply shines and glows! She is a picture of cuteness... and with a mother you like, she is going to do great things... don't ever for a moment doubt your situation... you are luckier than most!
(and as an aside... that is the darndest cutest coat i've ever seen!)
i feel your feelings i have been given a gift with julius. he is the light of our family.
i try think the world has changed but when my own husband had the same views it blew me away.he has sinced changed but it was a low blow. we are a family millions strong with our ds baby and kids alike.
well put.
I love you Alisheva.
You and your family are so beautiful.
Sheva, I read your blog for a while now and enjoy your thoughtful posts and beautiful pictures of your kids. I have to admit that you completely chancged my opinion about what it means to have a child with Down syndrome. Thank you! You Rozie is a beautiful little girl.
Thanks guys for all your support and kind words. This is why i publish things like this your words and thoughts soften these kind of blows.
*BTW everyone the coat is from Old Navy
I totally hear what you are saying. People are afraid of change and challenge so what they really mean is they want to give birth to a child who is not different. They don't want to have to deal with the difficulties that come along with a child with Down's Syndrome.
It is amazing to hear your perspective and reading from you just infuses anyone's heart with strength!
Your daughter is so beautiful, so cute and so precious! She is lucky to be part of your family and to have such a warm and loving mother like you!
Alisheva, how can any child be anything less than a bracha? i am so sorry that you were hurt by this girl's thoughtless comments...
Rozie has gotten so big!! she is absolutely stunning k"h!!
It is hard to put into words how much our children mean to us. Someone without a child with special needs does not see what we see every day and how we know we were hand picked specially to be the bearers of our gems! It's a shame that ignorance is so abundant, but we can heal with our wisdom and love! Keep up the good fight Momma, there probably would of never been anything you could of said to change that specific woman's reaction other then her meeting Rozie and all her gorgeousness and life! I know people swoon to my Asa and then can't keep their hands off him - LOL
I love reading and seeing you posts.
Your life sounds so nice, and your attitude is great. Rozie is adorable! What a cutie!
p.s. That is the coolest mug. I would love a Rockstar mug in the morning. Nice.
Sheva, I'm not sure if you noticed it so I wanted to let you know that your comment on my post Comforting Mourners prompted me to re-post two things that I had posted in the past.
You can read them here:
Why Do Good People Die Young - Part 1
and
Why Do Good People Die Young - Part 2
They're long posts...I hope they help answer the big question: WHY?!!!
It never ceases to amaze me how tactless some people can be. It's a shame that many people don't have that stop sign between their head and their mouth.
She is such a darling...I'm so sorry for that woman's hurtfull words and actions. Big hugs to you and Rozie. I continue to pray for your continued health. Our God can reach that woman's heart...you may have just been one of many stepping stones on her pathway. Be blessed!
Down syndrome IS beautiful! Thanks for stopping by my blog. I look forward to following your blog. Beautiful family!
She is so adorable...
Dear Sheva,
What a lovely little blessing Rozie must be. She is beautiful. People can be so hurtful, but you have such a good attitude about it all. We know from our experience with adoption, that we always have to educate people because they are ignorant of what is involved in the process. I know that we will receive some hurtful words in the future about our little man, but I am encouraged by your blog. I'd love to pick your brain about Baltimore docs and Kennedy Krieger, if you have experience there. Thank you again for your encouraging words! I'm also glad to learn a little yiddish as I read your blog :)
This was a fabulous post. I have felt this way so many times...I don't think people realize what they are saying sometimes. Our children ARE beautiful and the hardest part about having a child with Ds is definately OTHER people. Thanks for sharing.
Hello. I found your blog through Yaakov's Artisan Blog.
Your post about your daughter stirred memories of my youth when two seperate families we grew up near had a DS child each.
My experience is that they were both beautiful, warm, loving, intelligent, and fun children. Both have grown up into reponsible adults and both hold down useful and difficult jobs.
Your daughter is fortunate to have you...and I know you feel fortunate to have her. Forget the rest and enjoy.
Good luck and best wishes
Andy
Again thanks guys for all the comments,
I love this comment
"Both have grown up into responsible adults and both hold down useful and difficult jobs".
I love how you commented on the warm personality of children with Ds but you didn't leave it there you went to show that a difference does not cause someone not to be a contributing member of society. Thanks that meant a lot to me.
Rockstar mug: a score from Marshals
Hi. I am a mother of 5 wonderful kids, and what you wrote really touched my heart. Its amazing how some people can be sooo insensitive. What you write blew my mind,how eloquently you described how your beautiful daughter is such a source of blessings. She is blessed to have a loving, wonderful mother such as yourself.
P.s. great photography!!!
im a bit behind on your blog but im catching up! maybe it was her hormones speaking? either way thats no excuse for the way she behaved! glad to see rozie kept a headband on her head!!! xoxo
I'm with you there! People can be all "Aww, how sweet and happy she is" but when they are faced with the notion it might happen to them... chas v'sholom!!!
I think people view genetic disorders like a typical child who is affected by a disease or something. They don't want their child to "get" DS or another chromosome disorder.
People don't realize that this isn't an affected child, it's a child whose genes and chromosomes are arranged in that specific way. It's a package. You can't have a Rosie without Rosie genes, and I can't have an Adi without Adi genes.
I don't know if I'm expressing myself properly or not. This woman's baby already had all its genes then. The only thing she was doing is sending a message that she wouldn't accept her child if its genes weren't as she expected. I hope that kid grows up to be as tall and as pretty as his parents expect him to, excel in school in the way they expect him to, and have the personality that they want. Because it seems they expect a certain type of child and are horrified at the thought of getting someone whose core make-up is not what they expect.
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