We want to think and feel like our neighbors,and find comfort in this familiarity.

Its funny how the uniqueness of a blue eye is embraced, and a gorgeous shade of red hair is often sought after, take a look at the hair dye isle if you need proof. We are told to embrace your inner beauty, be yourself, set yourself apart from the crowd, walk to the beat of your own drum. Leaders never followed the group the stepped outside of the box. Yet Down syndrome or any other sort of similar uniqueness is still considered to be a mistake,a biological accident, a bad thing. You rarely hear Down syndrome thought of as a biological wonder, or a chromosome enhancement.

Why? Who sets the standards, who is to say what is not typical . Gorgeous auburn hair is not typical but someone decided that it is good, but almond shaped eyes are not. Who decides what intelligence is, are you smart because you have perfect grammar, or because you can sense the feelings of others with out words. Is intelligence based on what you can achieve or how you love the people around you. When standards are set and ideas become the norm, then danger is usually close behind. Take a look at our history, what has happened when people try to perfect a society, where blond hair and blue eyes were considered the only form of perfection. This equals danger. Don't think we are not here, major corporations like Etsy refuse to remove greeting cards insulting people with Down syndrome, they claim this does not violate their no hate speech policy.In our society it is not ok to be racist or anti-Semitic , but the differently abled, they are fair game.

I did not mean for this post to go this way my fingers have sort of taken over. Ive had a week where this concept has been challenged in a few places, and I'm getting all warrior advocate momma on ya. Life is a blessing and every different little beautiful part of it. Step out of your box, move past words like typical and normal, start embracing words like different and special. Having a child with Down syndrome is a blessing, and i never knew i was missing out on so much, so much light, so much love, so much deep inner soulful intelligence. The only thing that makes it hard is society, and the rule makers. They make Down syndrome hard they make my daughters life hard, not her, not her extra chromosome. Take the rule makers out of the picture and what we really have here is perfection.
I love you my little Rozie just the way you are from the moon and back a million billion trillion times over.













13 comments:
Oh my gosh, she is sooo cute!
Is there anything your readers can do to help your cause? I would love to get those cards out of print. Should we write letters or make calls? Help us help the world. Stay strong and thank you for writing!
You are right...it's society's obsession with a made-up definition of "perfection" that makes my little lady's life difficult. I am happy and grateful to be living outside that little box because now I have a much broader and deeper understanding of perfection!
Dear Sheva,
Your writings are truly inspiring. I love how you are so honest. I admire how you don't pretend that everything is perfect and the same time find the positive in everything. May you only see revealed good in your life. sincerely, Rochie Korolitzky
Dear Sheva,
I found your blog yesterday on baby center and have been catching up on your posts. "Step our of your box" has really hit me deep with in my heart. I have had similar thoughts about society's definition of perfection (aside from the redheadness--I was teased as carrot-top when younger) and you stated it beautifully. Thank you for being inspiring and for sharing the beautiful pictures of little Rozie.
I didn't know that about etsy but that definitely changes my opinion of them. Maybe you should raise an awareness campaign in the blog community. I'm sure lots of people would rally to get this changed. You are right- those type of things shouldn't be tolerated anymore than racism or anti-seminism and it is confusing to me why they are!!
I think moms like you and your willingness to speak on the issue candidly really help to shift others way of thinking. So don't apologize for this post!! You should print it on flyers and spread them around the country!
Sheva , I would love for you and your beautiful babies to be my guests here in Crown Heights's! I have a huge house and kids who cannot wait to play with your Rozie - I promise to pamper and entertain you till your heart's content! Whatever you dig - hanging out in770 participating in fantastic shiurim or Broadway shows, ice skating in Rockefeller Center, exploring our lovely island of Manhattan or just relaxing and doing absolutely nothing! Pleeeeeeeeeeeese come!!!!!!!! Post when the time is right for you to get away for a bit & I'll give you my contact info. Looking forward to meeting you and the gang! Shabbat Shalom!
I too have blogged about society having the "issues" and not my son. My son is not disbaled, society is. There are days I think you and I are born of the same heart...today is one of those days :)
1st of all Rozie has gotten so big, she's a little girly! I want to see you all!
2nd I love this post, so honest and clear, your words are always so inspiring. We need the world to read your blog! I am completely disgusted with etsy :(
Normal is just a setting on the dryer and typical is just boring! Rozie is beautiful and perfect just the way the Good Lord made her and I'm soooo glad there are little ones like her and my Reagan to teach the world these lessons.
beautifully written, as always! keep it up!! can't wait to do a play date finally :) (push me PLEASE! :) )
Sheva, spoken so truly. You inspire.
You are so right!!
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