Monday, November 28, 2011

Saline mints

We went to the zoo this Sunday to bask in the decent weather. Lift my nose to the sun and breathe in the rays.
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I needed to see my little ones faces as they peeked around the corners to see what animal was next.
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We brought our friend Sara with us. A friend that will hopefully move into our little Shtub to help this mommy out.
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Tomorrow is a treatment day for me. I go for these treatments every sixty days. Sort of like a maintenance therapy. They just want to make sure i am healthy and that i stay healthy. So i go in let them pump some scary stuff into my system for six hours, and hope my white cells behave. I will do this for 2 years, every sixty days. Really its not much of an inconvenience and i try to make the best of this situation. I get comfy in my chair pile on some blankets, get my Ipad out, and relax for 6 hours. Ok so i at least try to relax. This has been my new mountain to climb. Relaxing around doctors. Usually it goes like this. I go for some monthly blood work and as I'm waiting for the results my heart starts to race and i start to panic. Needless to say the heart monitor I'm attached to goes crazy and i end up spending a few extra hours in the hospital while the doctors monitor my heart to make sure i am not having another underlying condition. What is such a bummer is i bring this on myself. My blood work appointment should actually take about half an hour but because of my new found doctor fear i takes a lot longer. I hate this and it has been taking over my medical life.
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I get anxiety when i take the kids in for well checks and actually have been avoiding some important check ups Rozie needs. My anxiety has taken over, and it is not for without reason. I always saw myself as shatterproof, nothing like that would happen to me, and now the hard reality is I'm not. My security blanket in life has been taken away, my safety net. I have never feared doctors, hospitals, or blood work, now just the smell of Sinai hospital makes me sway. This is not working well for me. I go to Sinai at least once a month, and collapsing over its smell is not the way to make a grand entrance. " I'm here!" plop. Things have to change. I have to let it go and accept. I have to know that whatever the doctors tell me i can handle. Shoot I've handled a lot already. I also have to realize and accept that not every doctor visit will result in a new c-word diagnosis for myself, and G-d forbid my kids. We will continue to have rashes, stuffy noses, fevers and coughs, and those are just that stuffy noses, fevers, rashes, and coughs. I hate that my safety net has been removed, but just because its gone doesn't mean that i cant still land on my feet.
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Tomorrow i will walk in armed and standing tall. I will bring an extra cozy blanket and a few mints so i don't have to taste the saline flush through my port.I refuse to let this take me down mentally and physically. Hashem has already been so kind and lifted so much of my burden. I hope now i can lift mine and just trust him.
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17 comments :

Patti said... Best Blogger Tips [Reply to comment] Best Blogger Templates

oh my- those last two pics? it just doesn't get any sweeter than that!!

Sommer Thermann said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Oh my goodness, that last picture of your babies on the bench belongs in a magazine! Or on a greeting card. So beautiful!

sina @ the kosher spoon said... Best Blogger Tips [Reply to comment] Best Blogger Templates

you write so beautifully!

Good luck tomorrow!

i love the picture before last, very cute, nice soft lighting

Team Lando said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Lets go to the zoo together!!

chanalesings said... Best Blogger Tips [Reply to comment] Best Blogger Templates

First of all rosie laughing with dovi, I platz from the cuteness. Second, It must absolutely suck to go for treatment today. I'm sorry that's how you have to spend your day.
Your safety net will never be removed because HASHEM is IT. He's holding your hand I am sure.
It must be so difficult to deal with all the hospital visits but you are thriving, the kids are gorgeous and happy and bh, day by day you're building a gorgeous life. Feel good, thinking about you.

lovemy3 said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Beautiful pics!!! Good luck with your appointment.

Gilla said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Oh, they are gorgeous!! wishing you a R"S! I haven't been on babycenter in a long long time...and just recently found your blog again :) My Yosef is having his upsher in 3 weeks!!time is flying by....

Lexi said... Best Blogger Tips [Reply to comment] Best Blogger Templates

I think about you so much. Because you are brave, the rest of us try a little hard to be, too.

Beth said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Sheva, I love you. Your posts make me so happy. Seeing your children's sweet faces bring so much sunshine to my day. Hearing about your adventures makes my day. Truly, you are a blessing to this earth.

Stay strong, my friend. You are not your illness. You are bigger, stronger and smarter than the c-word. HaShem is holding you in His hands and He will get you through this time. Remember, too, that you have so many people davening for you - I keep you in my prayers always and keep you in my heart when I say tehillim.

Breathe deeply - there is a lot of love floating around here! :)

The Blitz said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Love your blog--I want to add you to my cholim list--can you post your name?
May Hashem guide you tomorrow and always.
--A reader in CA

Esther G said... Best Blogger Tips [Reply to comment] Best Blogger Templates

alisheva, thinking of you and wishing you strength and openly revealed goodness!....
P.s. The kids are precious!!

Keshet said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Thinking of you and wishing you a refuah shalaima--if you wouldn't mind sharing your Hebrew name, I would love to keep you in my tefillos (you can reach me at keshet.starr@gmail.com)

JerusalemStoned said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Beautiful pictures, beautiful family, beautiful blog. I'm so glad I stumbled onto it!Refuah Sheleima; may you feel the strength that Hashem is giving you.

wendy said... Best Blogger Tips [Reply to comment] Best Blogger Templates

I know how scary those appts can be - i have non hodgkins lymphoma - had chemo, radiation and rituxan treatments - stay strong - i took pix of my little ones with me at treatment - did meditations while focusing on their sweet faces - good luck i will be thinking of you

gena said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Oh dear girl, I can so relate to your post. Only for me it's been for our son (who had a heart transplant nearly 4 years ago when he was 17).... the smells of the hospital, the phone calls, waiting for blood work and test results...I know the fear. So much so that I too have avoided going to the doctor ( I know, I know, I need to go... I know).

I will add you to my Rosary intentions... so that you're fear will be carried and your beautiful children will live with a joyful mommy for many, many years to come....

shevi said... Best Blogger Tips [Reply to comment] Best Blogger Templates

thinking of you Please give me your name for davening YOure my inspiration I look forward to all your postings Theyre full of emunah and btachon hang in there hashem will watch over you and your gorgeous kids shabbat shalom
My kids just had their 4th child The first has down syndrome
Im always impressed with their devotion to him and all their children they dont let the challenge knock them down They move forward

Pesky Settler said... Best Blogger Tips [Reply to comment] Best Blogger Templates

Surely there's some sort of support group you can join or find a therapist you can talk one-on-one to about helping you through your anxiety?